The publication of our articles " Thyroid: the new formula of Levothyrox accused of side effects" and " Side effects of Levothyrox: no withdrawal of the new formula expected" August 17 and 24, has elicited many comments and patient testimonials treated with this medicine on our social networks.
Frequently used in the treatment of thyroid disorders, Levothyrox is in fact the heart of a heated controversy since the launch in June of a petition demanding the return of its old formula. The new formulation, put on the market last March at the request of the National Agency of Safety of Medicines and Health Products (ANSM) for product stability problems, is indeed accused of causing painful side effects by hundreds of patients.
If the drug poses so far "no security problem" according to the ANSM, a survey following these reports is nevertheless underway.
Patients ready to stop treatment
The Facebook page of MC, in particular, made it possible to collect various testimonies, mainly those of poor women facing this situation. Some explain today being ready to stop their treatment as the side effects they feel have become unbearable (editor's note: a conduct strongly discouraged by the health authorities).
The lack of information from health professionals is also widely deplored by those concerned.
Viviane MD: "I stopped the treatment, I have too many side effects, I'm going to do my next TSH scan in 2 months, it's just my choice, no medical advice."
Melanie P.: "Do you know how life can be hell?" Trembling, sadness, fatigue, headaches, inflammatory pain, loss of libido ... When we find a balance and it is questioned by sorcerer's apprentices who do not know what to invent to play the big arms! Thank you Merck !!! "
Evelyne B.: "Without tiring tiredness, low blood pressure, and joint pain since the new Levothyrox, my pharmacist just told me that there was a new box color!"
Nathalie M.: "I have not had a thyroid for 7 years I am under Levothyrox Since March I use the new formula and since April I have vertigo, hot flashes, a big fatigue, important weight gain , insomnia, headaches ... It is not livable and I find myself on antidepressants.Vivement the return of the old version.
Is it normal when you ask a doctor to agree that your body will get used to it?
Dany M.: "Important Side Effects Is it normal when you ask a doctor to agree that your body will get used to it? Sorry, but apparently the vast majority of patients who take Levothyrox's new formula experience significant side effects. What is the solution, not being able to stop the treatment? "
Ginie A.: "I suddenly want to stop taking this medicine (I take 100) Just to see what it gives! It's been 14 years that I take it and I feel like I'm patting myself everyday !!!!!"
Florence D.: "I have not been warned of the change of molecule by professionals, it is through social networks that I have learned.For the moment I note a fatigue and my TSH rate is down, while my mother's has gone up, I'm waiting to see what's next. "
Jacqueline RB: "I have been taking Levothyrox for 31 years, and for a few months I have been getting fat, tired and sleeping very badly, having joint pains, hot flashes and great sensitivity during a blood test. , they told me that I was 'hypo' and 'hyper' so I take two different pills each day with this new formula. "
Isabelle RD: "Fatigue, hyper emotivity, insomnia, joint pain ... I put this on the account of" everyday life. "Following this information that circulate I asked my endocrinologist if There were changes in the formula of the new Levothyrox She told me not to be aware The pharmacist told me that only lactose had been removed to avoid any risk of intolerance, that's all Bizarre no I will recontact my endocrinologist very quickly. "
The impression of a huge return back before being stabilized.
Dom MG: "Finally an answer to my condition.I had put it on the account of a slack while waiting for the holidays but for 2 months I am exhausted, I sleep very badly and my joints make me suffer. my mood, do not even mention it, it's unbearable to be like that, I do not have a thyroid, so I have no choice but to swallow my Levothyrox every morning. 'a huge return back before being stabilized.'
Lucile R.: "That's precisely why this drug is not substitutable, the change of excipients for this type of medicine is very important and the agency has done anything." The side effects are very important In this treatment, everything has to be redone, and the pharmacist just told me that they had changed all the colors of the boxes, that's all. "Trust me, she added, I do not do anything 'And of course, I do not trust anymore.To learn this kind of information by the women's press and not even by a health specialist still reveals a malaise in level of communication from authorities and health professionals.Once again we are considered a piece of meat and not as a human being. "